Activismos locos en salud mental: una revisión integrativa

Juan Carlos Cea Madrid Psicólogo. Magíster en psicología, mención psicología comunitaria. Estudiante de Doctorado en Psicología. Universidad de Chile, Santiago, Chile. image/svg+xml
Recibido: 18 agosto 2023, Aceptado: 14 noviembre 2023, Publicado: 28 noviembre 2023 Open Access
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Resumen


Se exponen los resultados de una revisión integrativa que tuvo como propósito identificar y analizar la producción de literatura académica sobre el activismo loco en el campo de la salud mental y su vinculación con las nociones de discapacidad y neurodiversidad. De las búsquedas realizadas en mayo del 2023, en las bases de datos Web of Science, Scopus y PubMed, se seleccionaron 52 artículos, y se aplicaron estrategias de análisis de contenido temático. Los resultados dan cuenta de diversas articulaciones entre los conceptos abordados, estableciendo una mirada crítica hacia el modelo biomédico en salud mental. En las formas de activismo loco, adquieren relevancia el enfoque de derechos humanos, la lucha contra el estigma y su influencia en los procesos de reforma al sistema de salud mental. Por otra parte, establecen un marco de justicia social, políticas de identidad y prácticas de apoyo mutuo desde la comunidad. En su conjunto, enfatizan innovaciones metodológicas y una mirada interseccional en la producción de conocimientos. Se concluye que es posible situar la locura como campo de constitución de un actor político y sujeto epistémico. Con base en ello, se formulan posibles líneas de investigación sobre los activismos locos en América Latina.


Referencias bibliográficas


1. Lehmann P. Alternativas a la psiquiatría. Revista de la Asociación Española de Neuropsiquiatría. 2013;33(117):137-150.

2. McLaughlin H. What’s in a Name: ‘Client’, ‘Patient’, ‘Customer’, ‘Consumer’, ‘Expert by Experience’, ‘Service User’-What’s Next? British Journal of Social Work. 2009;39(6):1101-1117.
Crossref

3. Organización Panamericana de la Salud. Orientaciones sobre los servicios comunitarios de salud mental: promover los enfoques centrados en las personas y basados en los derechos. Washington, D.C.: Organización Panamericana de la Salud; 2022.

4. Frese F, Davis W. The consumer–survivor movement, recovery, and consumer professionals. Professional Psychology: Research and Practice. 1997;28(3):243–245.
Crossref

5. Adame A, Knudson R. Beyond the counter-narrative - Exploring alternative narratives of recovery from the psychiatric survivor movement. Narrative Inquiry. 2007;17(2):157-178.
Crossref

6. Adame A, Knudson R. Recovery and the good life: How psychiatric survivors are revisioning the healing process. Journal of Humanistic Psychology. 2008;48(2):142-164.
Crossref

7. Adame A. “There needs to be a place in society for madness”: The psychiatric survivor movement and new directions in mental health care. Journal of Humanistic Psychology. 2014;54(4):456-475.
Crossref

8. Castillo-Parada T. Orgullo Loco en Chile: políticas de identidad, luchas simbólicas y acción colectiva en salud mental. Revista Chilena de Antropología. 2021;(43):131-146.
Crossref

9. Schrader S, Jones N, Shattell M. Mad pride: Reflections on sociopolitical identity and mental diversity in the context of culturally competent psychiatric care. Issues in Mental Health Nursing. 2013;34(1):62-64.
Crossref | PubMed

10. Lewis B. A mad fight: Psychiatry and disability activism. En: The Disability Studies Reader. New York: Routledge; 2006. p. 331-354.

11. Rashed MA. Madness and the demand for recognition: A philosophical inquiry into identity and mental health activism. Oxford: Oxford University Press; 2019.
Crossref

12. LeFrançois B, Menzies R, Reaume, G, (eds.). Mad matters: A critical reader in Canadian mad studies. Toronto: Canadian Scholars’ Press; 2013.

13. Beresford P, Russo J, (eds.). The Routledge International Handbook of Mad Studies. London: Routledge; 2021.
Crossref

14. Cea-Madrid JC, Castillo-Parada T. Locura y neoliberalismo: El lugar de la antipsiquiatría en la salud mental contemporánea. Política y Sociedad. 2018;55(2):559-574.
Crossref

15. Llewellyn-Beardsley J, Rennick-Egglestone S, Callard F, Crawford P, Farkas M, Hui A, et al. Characteristics of mental health recovery narratives: Systematic review and narrative synthesis. PLOS One. 2019;14(3):e0214678.
Crossref | PubMed

16. Newman D, O’Reilly P, Lee S, Kennedy C. Mental health service users’ experiences of mental health care: an integrative literature review. Journal of Psychiatric and Mental Health Nursing. 2015;22(3):171-182.
Crossref | PubMed

17. Victoria J. El modelo social de la discapacidad: una cuestión de derechos humanos. Boletín Mexicano de Derecho Comparado. 2013;46(138):1093-1109.
Crossref

18. Jaarsma P, Welin S. Autism as a natural human variation: Reflections on the claims of the neurodiversity movement. Health Care Analysis. 2012;20(1):20-30.
Crossref | PubMed

19. Milton D, Ryan S, (eds.). The Routledge International Handbook of Critical Autism Studies. London: Routledge; 2022.
Crossref

20. Souza MT, Silva MD, Carvalho R. Revisão integrativa: o que é e como fazer. Einstein. 2010;8(1):102-106.
Crossref | PubMed

21. Torraco R. Writing integrative literature reviews: using the past and present to explore the future. Human Resource Development Review. 2016;15(4):404-428.
Crossref

22. Zilmer J, Díaz-Medina B. Revisión narrativa: elementos que la constituyen y sus potencialidades. Journal of Nursing and Health. 2018;8(1):1-2.
Crossref

23. Russell C. An overview of the integrative research review. Progress in Transplantation. 2015;15(1):8-13.
Crossref

24. Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology. 2006;3(2):77-101.
Crossref

25. Rashed M. An approach to the boundary problem: mental health activism and the limits of recognition. Philosophy, Psychiatry & Psychology. 2021;28(4):297-313.
Crossref

26. Castrodale M. Mad studies and mad–positive music. New Horizons in Adult Education and Human Resource Development. 2019;31(1):40-58.
Crossref

27. Russo J, Wooley S. The implementation of the convention on the rights of persons with disabilities: more than just another reform of psychiatry. Health and Human Rights. 2020;22(1):151.

28. Näslund, H. Collective deliberations and hearts on fire: Experiential knowledge among entrepreneurs and organisations in the mental health service user movement. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations. 2022;33(1):201-212.
Crossref

29. Rose D. Critical qualitative research on ‘madness’: knowledge making and activism among those designated ‘mad’. Wellcome Open Research. 2021;6:98.
Crossref | PubMed

30. Spandler H, Allen M. Contesting the psychiatric framing of ME/CFS. Social Theory & Health. 2018;16:127-141.
Crossref

31. Carr S. ‘I am not your nutter’: a personal reflection on commodification and comradeship in service user and survivor research. Disability & Society. 2019;34(7-8):1140-1153.
Crossref

32. Rose D. A hidden activism and its changing contemporary forms: Mental health service users/survivors mobilising. Journal of Social and Political Psychology. 2018;6(2):728-744.
Crossref

33. de Bie A. Respectfully distrusting ‘students as partners’ practice in higher education: Applying a mad politics of partnership. Teaching in Higher Education. 2022;27(6):717-737.
Crossref

34. Willer EK, Krebs E, Castaneda N, Samaras A. Mad to the bone: learning outcomes of critical grief pedagogy. Communication Education. 2021;70(1):27-48.
Crossref

35. Thompson V. E. Policing in Europe: disability justice and abolitionist intersectional care. Race & Class. 2021;62(3):61-76.
Crossref

36. Hughes J. Does the heterogeneity of autism undermine the neurodiversity paradigm? Bioethics. 2021;35(1):47-60.
Crossref | PubMed

37. Casanova E, Widman CJ. A sociological treatment exploring the medical model in relation to the neurodiversity movement with reference to policy and practice. Evidence & Policy. 2021;17(2):363-381.
Crossref

38. Grinker RR. Autism, “stigma”, disability: A shifting historical terrain. Current Anthropology. 2020;61(S21):S55-S67.
Crossref

39. Moreno-Poyato A, El Abidi K, Rodríguez-Nogueira Ó, Lluch-Canut T, Puig-Llobet M. A qualitative study exploring the patients’ perspective from the ‘Reserved Therapeutic Space’nursing intervention in acute mental health units. International Journal of Mental Health Nursing. 2021;30(3):783-797.
Crossref | PubMed

40. Cea-Madrid JC, Castillo-Parada T. Electroshock o Terapia Electroconvulsiva (TEC) en Chile: Diagnóstico crítico, activismo social y enfoque de derechos. Quaderns de Psicologia. 2020;22(2):e1521.
Crossref

41. Cosgrove L, Morrill Z, Karter JM, Valdes E, Cheng, CP. The cultural politics of mental illness: Toward a rights-based approach to global mental health. Community Mental Health Journal. 2021;57:3-9.
Crossref | PubMed

42. Campbell C. Social capital, social movements and global public health: Fighting for health-enabling contexts in marginalised settings. Social Science & Medicine. 2020;257: 112153.
Crossref | PubMed

43. Huang D. Cyber Solace: Historicizing an Online Forum for Patients with Depression, 1990-1999. Journal of the History of Medicine and Allied Sciences. 2022;77(3):343-365.
Crossref | PubMed

44. Aghazadeh S. “Recovery warriors”: The National Eating Disorders Association’s online community and rhetorical vision. Public Relations Inquiry. 2022;11(1):103-119.
Crossref

45. Holland D. Activism and human rights for people with mental disabilities in postcommunist Europe. American Psychologist. 2019;74(9):1167.
Crossref | PubMed

46. Kritsotaki D. Changing Psychiatry or Changing Society? The Motion for the Rights of the “Mentally Ill” in Greece, 1980-1990. Journal of the History of Medicine and Allied Sciences. 2021;76(4):440-461.
Crossref | PubMed

47. Šumskienė E, Nemanyte M. Discursive exploitation or actual impact: Mental health anti-stigma campaigns in the post-communist area. Archives of Psychiatry and Psychotherapy. 2020;22(1):22–33.
Crossref

48. Kitafuna K. Personal experience, involvement and activism for the reform of Uganda’s mental health system. Community Mental Health Journal. 2022;58(5):824-828.
Crossref | PubMed

49. Kitafuna K. A Critical overview of mental health-related beliefs, services and systems in Uganda and recent activist and legal challenges. Community Mental Health Journal. 2022;58(5):829-834.
Crossref | PubMed

50. Read UM, Sakyi L, Abbey W. Exploring the potential of a rights-based approach to work and social inclusion for people with lived experience of mental illness in Ghana. Health and Human Rights. 2020;22(1):91-104.

51. Dunlop R, Pols H. Deinstitutionalisation and mental health activism in Australia: emerging voices of individuals with lived experience of severe mental distress, 1975–1985. History Australia. 2022;19(1):92-114.
Crossref

52. Amarante P, Torre E. “Back to the city, Mr. citizen!”—psychiatric reform and social participation: from institutional isolation to the anti-asylum movement. Revista de Administração Pública. 2018;52:1090-1107.
Crossref

53. Ardila-Gómez S, Agrest M, Fernández MA. Rosales M, López L, Díaz AR, Stolkiner A. The mental health users’ movement in Argentina from the perspective of Latin American Collective Health. Global Public Health. 2019;14(6-7):1007-1018.
Crossref | PubMed

54. Montenegro C. Beyond participation: Politics, incommensurability and the emergence of mental health service users’ activism in Chile. Culture, Medicine, and Psychiatry. 2018;42(3):605-626.
Crossref | PubMed

55. Montenegro C, Cornish F. Historicising involvement: the visibility of user groups in the modernisation of the Chilean Mental Health System. Critical Public Health. 2019;29(1):61-73.
Crossref

56. Ortega F, Rodrigues Müller M. Negotiating human rights narratives in Global Mental Health: Autism and ADHD controversies in Brazil. Global Public Health. 2022;17(11):3189-3203.
Crossref | PubMed

57. Eiroa-Orosa F, Lomascolo M. Training mental health activists increases the well-being of participants with high baseline levels of self-stigma: Results of the Obertament training evaluation. American Journal of Orthopsychiatry. 2018;88(6):617-625.
Crossref | PubMed

58. Marcussen K, Gallagher M, Ritter C. Stigma resistance and well-being in the context of the mental illness identity. Journal of Health and Social Behavior. 2021;62(1):19-36.
Crossref | PubMed

59. Rashed M. The identity of psychiatry and the challenge of mad activism: Rethinking the clinical encounter. Journal of medicine and philosophy. 2020;45(6):598-622.
Crossref | PubMed

60. Rashed M. In defense of madness: The problem of disability. Journal of Medicine and Philosophy. 2019;44(2):150-174.
Crossref | PubMed

61. Barnetz Z, Gefen S. From “patient” to “activist”: Treatment experiences, changing perceptions, and resistance of mental health survivors. Journal of Progressive Human Services. 2022;33(1):8-39.
Crossref

62. Keller C. Apoyo mutuo, autogestión y activismo en salud mental: Elementos para la democratización del cuidado. Athenea Digital. 2022;22(3):e3130.
Crossref

63. Sampietro H, Carmona V, Sicilia L, Gavaldà-Castet C, Rojo J, Gómez Benito J. What recovery means for mental health services users in Catalonia. Quaderns de Psicologia. 2022; 24(2):e1880.
Crossref

64. Suess Schwend A. Trans health care from a depathologization and human rights perspective. Public Health Reviews. 2020;41(1):1-17.
Crossref | PubMed

65. McAuliffe C, Walsh RJ, Cage E. “My whole life has been a process of finding labels that fit”: A Thematic Analysis of Autistic LGBTQIA+ Identity and Inclusion in the LGBTQIA+ Community. Autism Adulthood. 2022;5(2):127-138.
Crossref | PubMed

66. Montenegro C. ‘Are You a Radical Now?’Reflecting on the Situation of Social Research (ers) in the Context of Service-User Activism in Mental Health. Journal of Social and Political Psychology. 2018;6(2):661-676.
Crossref

67. Crook S. The women’s liberation movement, activism and therapy at the grassroots, 1968–1985. Women’s History Review. 2018;27(7):1152-1168.
Crossref | PubMed

68. Castillo-Parada T. De la locura feminista al ’feminismo loco’: Hacia una transformación de las políticas de género en la salud mental contemporánea. Investigaciones Feministas. 2019;10(2):399-416.
Crossref

69. Douglas P, Runswick-Cole K, Ryan S, Fogg P. Mad mothering: Learning from the intersections of madness, mothering, and disability. Journal of Literary & Cultural Disability Studies. 2021;15(1):39-56.
Crossref

70. Kafai S. The politics of mad femme disclosure. Journal of Lesbian Studies. 2021;25(3):182-194.
Crossref | PubMed

71. Simpson H. Disability, neurodiversity, and feminism. Journal of Feminist Scholarship. 2019;16(16):81-83. 10.23860/jfs.2019.16.10.
Crossref

72. Smilges JL. Neurotrans: Thorazine, HIV, and Marsha P. Transgender Studies Quarterly. 2022;9(4):634-652.
Crossref

73. Szymanski A. Mental illness documentaries at the National Film Board of Canada: Filmmaking as therapeutic activism. Canadian Journal of Film Studies. 2019;28(2):23-47.
Crossref

74. Cea-Madrid JC, Castillo-Parada T. Enloqueciendo la academia: Estudios Locos, metodologías críticas e investigación militante en salud mental. Revista Latinoamericana de Metodología de las Ciencias Sociales. 2021;11(2):e097.
Crossref

75. Sayre D. Care work and social justice in creative arts therapy: Putting queer performance theory and disability justice in conversation with drama therapy. The Arts in Psychotherapy. 2022:80:101940.
Crossref

76. Kennedy H, Marley M, Torres K, Edelblute A, Novins D. “Be creative and you will reach more people”: youth’s experiences participating in an arts-based social action group aimed at mental health stigma reduction. Arts & health. 202;12(1):23-37.
Crossref | PubMed

77. Cea-Madrid JC. (ed.). Por el derecho a la locura: La reinvención de la salud mental en América Latina. Santiago: Proyección; 2018.

78. Gorman R, Le François B. Mad studies. En: Cohen B, ed. Routledge International Handbook of Critical Mental Health. London: Routledge; 2018. p. 107-114.
Crossref

79. Sweeney A. Why mad studies needs survivor research and survivor research needs mad studies. Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice. 2016;5(3):36-61.

80. Cea-Madrid JC. Estudios Locos Latinoamericanos: marcos conceptuales y agenda de investigación. Physis: Revista de Saúde Coletiva. 2022;32(4):e320403.
Crossref